Summary
Insights on a study into long-term conditions and new research opportunities.
A stakeholder event for people and clinicians who took part in the SPELL Study will take place on Tuesday 13 May.
The SPELL Study was carried out at several Manchester GP practices and aims to design primary care services that meet the needs of people with multiple long-term conditions.
The study team wanted to understand their experiences of treatment burden, and how primary care impacts them, and to identify those most at risk of high treatment burden.
The team now wants to hear from people who took part in the research and hear what they have to say about the work they put into looking after their health.
Health professionals are also invited to listen to the insights and contribute to shaping GP services that better support those with lots of long-term conditions.
The event will be held at Friends’ Meeting House, Manchester, M2 5NS from 1.30pm to 4.30pm. You can register your interest in the event by emailing Alice or Laura at spell-study@bristol.ac.uk
New opportunities in clinical research are available from the National Institute for Health and Care Research (NIHR) North West Regional Research Delivery Network (NW RRDN):
The TIGER study – This study aims to find out whether changes in the diet of children with eczema, based on the results of food allergy tests, improves their eczema control or not.
CMVibe Study by Moderna – uMED is looking for practices to take part. The CMVibe study evaluates the safety and immune response of the mRNA-1647 Cytomegalovirus vaccine, which aims to prevent CMV infection in children 9 to 15 years old. uMed is enabling GPs to participate in the CMVibe study with no extra workload for practice staff.
Collaboration opportunity on opioid tapering project – The Oxford Health Biomedical Research Centre is looking for GPs and clinical pharmacists to take part in a feasibility exercise, to assist the development of a randomised control trial later this year. This feasibility exercise includes taking part in a survey, and an optional focus group.
If you take part in the focus group, you will receive a £50 Amazon voucher.
In 2023, the NHS released the Optimising Personalised Care for Adults Prescribed Medicines Associated with Dependence or Withdrawal Symptoms: Framework for Action for Integrated Care Boards (ICBs) and Primary Care. One of its key recommendations is for primary care teams to hold regular medicines reviews with patients.
The opioid tapering project aims to develop a tool that will:
- encourage open conversations around opioid use
- facilitate shared decision-making in the review process
- provide GPs and primary care teams with easily accessible, ready-to-use resources (existing materials reformatted for ease of use)
The Chief Investigator has written a letter explaining why they need your support.
The project has very strong links to PPI groups, and is also looking for patients across the region to provide feedback on what concerns they would most likely raise in their GP consultations.
A full list of available studies in general practice can be found on the NIHR Primary Care Research Hub. You can also get in touch with the team by emailing: nw.rrdn@nihr.ac.uk
More information about clinical research and the work of NIHR NW RRDN can be found on the PCB website
